Thursday, December 22, 2011

South Carolina - Test Results

The nurse called with our test results this morning.  But first, I will share a couple photos from our trip.

Here's Silas in his child-sized wheelchair following his endoscopy and colonoscopy.

And here are a couple pictures of the patches on his back from the allergy testing.

One afternoon, Silas enjoyed playing at a nearby playground.

I mentioned that we looked at Christmas lights one night.  The place we went had it set up for you to drive through to look at the lights.  At one point, there was a large field with deer, cows, zebras, etc.  Vehicles drove randomly about the field, trying to feed the animals.  Here's a glimpse of a cow who stuck his head in our van.  Criss was trying to feed him apples, which fell onto my shirt.  I squeeled as the cow started nibbling on my shirt.  Silas just laughed and laughed.

Now for the results...  They have determined that Silas has Crohn's disease.  It is especially affecting his colon and small intestine at this point.  On top of that, he has the problem with fructose malabsorption as well as multiple food and environmental allergies.  The allergies include milk, egg, beef, pork, dust mite, and mugwort (which cross-reacts with celery, apple, kiwi, peanut, fennel, carrots, parsley, coriander, sunflower, and peppers).

They are taking him off the anti-inflammatory medication that he's been taking and putting him on a new medication.  I'm not sure how to spell it, but I think it was Apreso?  The pharmacy had to order it, so it won't be in until tomorrow.

Along with the new medication, we have to make sure the allergens are eliminated from his diet as well as all forms of fructose.  This includes wheat - a fructan.  All the "ol" sugars - manitol, sorbitol, etc. also cannot be used.  We had pretty much eliminated all of these anyway because he was having such terrible problems with any type of sugar.

I am grateful that we finally have some answers and someone that is helping us through these diagnoses.  Yesterday was Silas' sixth birthday.  It has taken us six very long years to get to this point.  I only hope they can find a way to manage his symptoms.


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