Earlier this year, I came in contact with a local mom whose son has eosinophilic esophagitis (EE). It is in the same group of diseases that they will be testing Silas for at the end of the year. EE mostly affects the esophagus while EGE (the one Silas might have) mainly affects the stomach and small intestine.
Since we were first introduced, Victoria and I have had the opportunity to meet several times. Two of these times included the kids, and it was nice for Silas to meet someone that has severe food problems like he does. Over the summer, The Birmingham News printed an article about the family. And now, the September issue of Birmingham Parent has published another article about the DeLanos. It is titled, “Life Without Food: The Struggles of Children with Eosinophilic Disorders.” I thought they did a great job on the article, and I hope you will take a minute to read it. It’s on pages 14-16.
Hopefully I will have time to write more soon. Thanks for reading!