Here’s a copy of the medicine chart we have posted in the kitchen to help us keep track of all the kids’ medicine. (It shifted a little when I pasted it, but you get the general idea.)
| Monday | Tuesday | Wednesday | Thursday | Friday | Saturday | Sunday | |||
| Morning (7:00) | Silas | Polyethylene Glycol | |||||||
| powder, 1/2 dose in water cup | |||||||||
| Balsalazide Disodium | |||||||||
| 1 tablet, yellow, use syringe | |||||||||
| Autumn | Polyethylene Glycol | ||||||||
| Powder, 1/2 dose in water cup | |||||||||
| Threelac | |||||||||
| Powder, 1/2 packet in water cup | |||||||||
| Leukovorin | |||||||||
| 1/2 tablet, swallows whole | |||||||||
| CoQ10 | |||||||||
| 2 chewables | |||||||||
| Vitamin | |||||||||
| 1 chewable | |||||||||
| Lunch (11:00) | Autumn | CoQ10 | |||||||
| 2 chewables | |||||||||
| After Nap (3:00) | Silas | Polyethylene Glycol | |||||||
| powder, 1/2 dose in water cup | |||||||||
| Autumn | CoQ10 | ||||||||
| 2 chewables | |||||||||
| Night (7:00) | Silas | Balsalazide Disodium | |||||||
| 1 tablet, yellow, use syringe | |||||||||
| Singulair | |||||||||
| 1/2 tablet, swallows whole | |||||||||
| Autumn | CoQ10 | ||||||||
| 2 chewables |
Also, Silas saw his GI here in town yesterday to get some documents for the school to assemble a Health Plan. I found out that Silas had a low prealbumin level of 13 (indicating malnutrition) in December of 2009 that no one ever told me about. He was pretty sick at the time, so they dismissed it and never went back to recheck it. It was one of the things that was low on the blood work from Dr. M in South Carolina. So, it’s very possible that he’s been malnourished for several years now. L The doctor also took some blood to an IBD Diagnostic Panel.
I ordered an adult multivitamin for Silas to try, and we’ll just have to see if it triggers problems in his digestive system. I’ve also ordered a can of Elecare to see if I can coax him into drinking it. He was on Elecare several years ago, and it’s the only thing he’s been on that doesn’t cause him any problems. We quit it at the time because he refused to drink it any more. (It’s pretty nasty – the smell alone will make you a little queasy.)
He’s finally recovering from the Neocate Splash trial. For that, I am thankful.
Janel
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